Showing posts with label Hansen's disease. Show all posts
Showing posts with label Hansen's disease. Show all posts

Wednesday, April 14, 2021

Leukemia and Leprosy #AtoZChallenge2021

Boston Children's Hospital

The protagonist in my mystery series is an insurance investigator. Plots or subplots in the novels deal with several different illnesses or diseases, although none of the unusual or obscure conditions begin with the letter "L", such as sickle cell disease, gas gangrene, the thalidomide tragedy, and gene disorder. But subplots in the first and sixth novels focus on leukemia and leprosy.

My research of leukemia began when I worked in the cancer ward of a hospital in Milwaukee, Wisconsin, at a time when a diagnosis didn't often include a cure. Eventually, after taking up writing, I familiarized myself with Boston Children's Hospital and the Jimmy Fund in Boston where hope of successful survival from childhood leukemia and other forms of cancer reigns eternal.

Leprosy in the Hawaiian Islands, now known as Hansen's Disease, is a well-researched story of devastation and hopelessness. Its role in my sixth novel was not of an illness, however, but an example of how happiness ultimately comes to those who choose to be happy. Living conditions in the leper colony at Kalaupapa on the Hawaiian Island of Molokai in the 1800s was primitive; afflicted persons of all ages were shipped there from the other islands and left to fend for themselves until their death. For an in depth and enlightening story about this time in history, check out the best selling historical novel entitled Moloka'i by author Alan Brennert.


  *****

Wednesday, February 24, 2021

MOLOKA'I by Alan Brennert: Book Review

Moloka‘i by Alan Brennert was published in 2003. This is not a story about Father Damien, the Belgian priest who spent his life caring for the Hawaiian people diagnosed with Hansen’s disease. This disease was also known as leprosy, and the victims of the disease were confined to the peninsula of Kalaupapa on the Hawaiian Island of Molokai. Father Damien arrived in Hawaii in 1864. He was diagnosed with Hansen’s disease in 1894 and became bedridden a little over four years later. 

Mr. Brennert’s novel, Moloka‘i, his vision of daily life in that setting following the time of Father Damien, is exceptionally well-researched, and excellently written.
 
A mule ride on the Island of Molokai takes you on a trail that leads down the face of the Pali cliff to the peninsula of Kalaupapa. The closest I’ve come to Kalaupapa is the “top-side” of the island. A certain spot top-side overlooks the area where so many of those afflicted with the disease lived out their years. The top-side portion of the island rises high above the homes of residents at Kalaupapa and stretches east toward Maui. 
 
My view of Kalaupapa
 
The life of Rachel, the main character in Mr. Brennert's novel Moloka‘i, is woven throughout this fact-based tale. The novel begins with a stark illustration of how Hawaiians were “condemned” for being diagnosed with what was known, for many years, as leprosy. 

This story pulls no punches, relating how the people, many of them young children, were forced to leave their homes and families to live in substandard conditions among strangers on an unfamiliar island. The narrative unfolds in turns with horror, humor, sadness, and triumph. Sickness, both physical and emotional, permeates the whole. 

It was with satisfaction, however, that I read the closing chapters and endnotes of this inspiring novel.
 
 *****


Monday, April 18, 2016

P is for PLAKA - A GREEK VILLAGE #AtoZChallenge

For this year's challenge, my theme is The Fun in Writing. Each of my 26 posts for April is aimed at
illustrating fun parts of an author's day. A writer doesn't only write.
Creating a story or an essay requires research, revision, editing, and lots and lots of coffee and chocolate.


 
P is for PLAKA - A GREEK VILLAGE
 
Every so often, a novel takes my breath away with its unexpected story line. The Island - A Novel by Victoria Hislop is one such books. The story begins in the Greek village of Plaka, which becomes a backdrop for a heartrending story about four generations of women touched by "dreams and desires" and "secrets desperately hidden" as disease erodes their lives.
 
 
 
Shortly after moving to Hawai'i in 1992, I started reading about Kalaupapa on the Island of Moloka'i, where the local people who were diagnosed with "leprosy" now known as Hansen's Disease, were taken to live out their lives. Although I have visited Moloka'i, the donkey ride down to the peninsula is still on my bucket list. . .very high on the list.
 
When I picked up a copy of The Island - A Novel, I was amazed to learn that off the coast of Plaka is the tiny island of Spinalonga, where the Greek nation's leper colony once was located - a place that has "haunted four generations of Petrakis women." I savored every single one of the novel's 473 pages.
 
For me, The Fun in Writing extends to The Fun in Reading.
 
 
**********
 
 
To stay on track with my goal of reading and reviewing 71 books between Oct., 2015 and Oct., 2016, my book review follows.
 
THE ISLAND - A Novel by Victoria Hislop
 

 
A comment by The Observer (UK) about this book: “At last – a beach book with heart ...” suggests the commentator did not understand the underlying material presented in the story (or does not comprehend the local meaning of “beach read.” Not that the book couldn’t be read while lounging on the beach, but that “a beach book” implies a light, fast read, to be enjoyed with little thought, and as quickly forgotten.
 
Over the years, I’ve read much about Kalaupapa, Father Damien, and the “leper colony” on the Hawaiian Island of Molokai’i. This added a special interest in my reading of Victoria Hislop’s The Island, which is set on Spinalonga. This tiny island off the coast of Plaka, a small Greek seaside village, is where that nation’s “leper colony” was located during the twentieth century.
 
The pain of separation permeates the pages of this novel that tells of a man’s love for his family which is sorely overwhelmed by ravages of the disease. There is the agony of forced removal from family and friends living in Plaka; relocation and isolation from the rest of humanity; the experience of constant guilt over an uncontrollable situation. Loss of control and independence in your life devastates the mind, body, & soul.
 
This is the story of one family’s triumph over an adversity far beyond imagination.

 
Click here to view internet photographs of Plaka: